Saturday, December 8, 2007

Cora update

Cora received a few early Christmas presents from her Grammie last week. She has since been zooming around the house either pushing her baby in a stroller, or collecting everything she can find into her shopping cart. She is a delight to watch.

Everyone is asking for an update on her Tuberous Sclerosis. Not much new news, which is GOOD news! She is not on anticonvulsant medication yet, against all the doctor's recommendations, and yet it has worked out to be so fortunate because we now know that her lack of any more seizures is a result of God answering prayer and not medication! The doctor on Monday was quite surpised that she hadn't had any more, saying that once they start, they usually really start since the tumors have grown enough to start really aggravating the brain. There is concern still about sub-clinical seizures which we cannot see or know she's having unless we observe a slowing or regressing in development. An infant development specialist will help to discern this (we are on a waiting list), but from our perspective, she seems to be developing quite well. She is learning new things everyday, and often surprises us when she responds in understanding to things we say. We're especially encouraged that she shows no signs of autism after seeing the frightening statistics of about 50% developing it in some form or other. She is as sweet and cuddly and social as could possibly be.

Our biggest prayer request right now is that we can get through holiday travels seizure-free. Then we do not have to further consider meds or have the stress of hospital visits while we are at home in the U.S. Please also continue praying with us that she will remain on the mild side of any and all symptoms resulting from the TS. Thank you!

2 comments:

Unknown said...

Thanks for the update on Cora! What a blessing that she is doing so well. i will be praying for your Christmas and hope that it is wonderful!

It snowed all day yesterday, giving us about 6 inches of snow here. It was great to have the Christmas music playing while watching the fluffy flakes fall. It made doing homework a little better!

Miss you guys,
Rebekah

Erin said...

She is so precious!! I can't wait to see her again.